tag:blogger.com,1999:blog-8329357512064084091.post5175181383462961195..comments2024-03-22T21:57:16.556+00:00Comments on Pink Haired Princess: M.E. On: The Gallstone JourneyPink Haired Princesshttp://www.blogger.com/profile/01516054022997327474noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-8329357512064084091.post-65989135358179027482017-06-30T16:51:15.088+01:002017-06-30T16:51:15.088+01:00I started reading from "Life Right Now" ...I started reading from "Life Right Now" since latest one I'd read was "Have You Tried?" and now I've finally finished reading this latest M.E. post about your gallstone journey.<br />good or bad,I had to take some days off for past 2 days because of tenosynovitis.<br />I know exactly what you mean about when your M.E. being pushed backed by something else taking the priority!<br />and that's really true about getting used to with pain as well,<br />as you said about who struggles to walk,would feel fine sitting in a wheelchair all day. <br />I'm not so clear about how to say about it but,it's like you live by according to elimination when you suffering too much pain or any kind of situation that's bothering or limiting you...<br />wish you the best always XAhttps://www.blogger.com/profile/02395122828282849296noreply@blogger.comtag:blogger.com,1999:blog-8329357512064084091.post-21207983185954998272017-06-25T19:18:53.118+01:002017-06-25T19:18:53.118+01:00sorry I've noticed that I wrote too much...als...sorry I've noticed that I wrote too much...also there's some typo I believe...</3Ahttps://www.blogger.com/profile/02395122828282849296noreply@blogger.comtag:blogger.com,1999:blog-8329357512064084091.post-43980403234414595732017-06-25T19:14:28.547+01:002017-06-25T19:14:28.547+01:00Hi.
I'm not sure if you'd recognise me but...Hi.<br />I'm not sure if you'd recognise me but I've finally started visiting your blong again<3<br />I've been sick and busy → sicker lately.<br /><br />since you started posting about your personal experience of suffering M.E. sometimes I wonder if cause of my sickness is also M.E.<br />many of symptoms sounds very familiar but none of doctors that I've met has ever mentioned about M.E. but obviously doctors are not always correct also M.E. isn't known well in my country as well and I don't know much of medical stuffs.so they rather call me either depressed or lazy or it's just 'body-type'.<br />now it's afterwork to me and I don't have enough energy to read this post but I was reading your previous M.E. post that you posted after I stopped visting your blog at last night as I've been missing your blong past months.<br />I'm going to read this and more of posts properly as soon as I'm able to but I just wanted say hi,also may have empathy from you.<br />people,specially ones that are at my work would think of me a lazy,unmotivated,slow person.<br />I was feeling dizzy and sick since I was small then finally found out that I had low blood pressure when I was middle of teen.many people had complained that I never could stay still or leaning on something while listening at school but I was feeling like throwing up and fainting all those moments.<br />I also have problem with memorising,talking,listening.<br />my head feels unclear,foggy,dizzy,sleepy.yawing,rash all the time and more and more and all I know is they are getting worse time after time.<br /><br />and now these past a month or more,I've got a lot of problem talking,listening,writing and memorising.<br />my word gets stucked,I forget simple spelling (some most basic letters in my language which I never had chance to forget in my life).<br />grammar is full of mess.<br />forget something from less than a minute ago.<br /><br />and the worst of being sick is I'm not even able to do something I like or care.<br />even if I try,I barely finish on halfway or something.and I even hate things on halfway!<br />when I do something,I'd like to focus and do at least MY best.<br />right now I'm do shoe reparing but I'm thinkig about quitting and switching to something more un-harm-able things since I'm too scared of ruining someone's shoe and I've noticed I actually don't care about formal male shoes or leather shoes with certificate or blahblah I only care about my kind of boots and high heels.<br />it's actually hot there in my working place with machine and no real helpful air-conditioner,full of dust,piceces of shaved rubber and leather.<br />sorry for grumbling as always.<br />but there's not much of who understands my suffering.<br />people around me always said I look energetic more than anybody else.<br />I think it's because I smile or my face is naturally smiling but that's not really doing to me.<br />none take serious about me feeling sick.even my family took years and finally started taking serious after seeing me really being ill,also crazy rash I had for serveral days this new year.<br />but I'm still not in good treatment and I still got to work morning to night.<br />I feel the too much weight of life of duty.<br /><br />can't wait to read more of you on next day off :3 I miss doing it a lot,I actually felt kind of relieve last night when I finally read you again after long while,but at the same time I've noticed that you've been writing less often lately so I know you've been sick too...I saw you on instagram,you've lost I lot of weight I guess.I see your legs for thinner as well through TSGD posts.<br />you look good anyway but your health is what I'm worried about.<br />also just read about your gallstone surgery,I really hope everything went well.<br />and you know I really love your long hair<3I always wanted see you with long hair so looking forward to see how you style it and all that!<br />I've been taking some medications for my stomach problems last few weeks but reading you helps more than that I believe : )<br />now I got to hurry to go sleep for work tomorrow DxAhttps://www.blogger.com/profile/02395122828282849296noreply@blogger.comtag:blogger.com,1999:blog-8329357512064084091.post-1557161638617510402017-06-01T00:50:16.414+01:002017-06-01T00:50:16.414+01:00Oh my goodness Gem, this just sounds awful! I am s...Oh my goodness Gem, this just sounds awful! I am so sorry you have to cope with this on top of your ME!xxKezziehttps://www.blogger.com/profile/15705356707599121605noreply@blogger.comtag:blogger.com,1999:blog-8329357512064084091.post-15740234751225013382017-05-30T22:27:48.515+01:002017-05-30T22:27:48.515+01:00I'm sorry you have this going on as well as th...I'm sorry you have this going on as well as the ME. I'm glad they're taking your gallbladder out, but I worry for you that the surgery will throw you into a flare up afterwards. Just be as kind to yourself as you can. xxLove Leahhttps://www.blogger.com/profile/18304536416614698108noreply@blogger.com